Problemy Edukacji, Rehabilitacji i Socjalizacji Osób Niepełnosprawnych, T. 27, no. 2 (2018), s. 143-156
The article presents theoretical reports and the results of own research on the experience of stress
and burnout of power from the perspective of mothers of children with rare genetic diseases. The
first part presents the concepts of rare disease, parental stress and burnout. I am also familiarizing selected reports from research on stress experienced by parents of children with disabilities. In the
second part, I briefly present the methodological assumptions of the research. Next, I present the
results of research carried out using the method of narrative interview among mothers of children
with rare genetic diseases regarding their stress and burnout of strength.