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Title: Rodzina – źródłem wsparcia w doświadczeniu rzadkiej choroby dziecka
Authors: Klajmon-Lech, Urszula
Keywords: rodzina; rzadka choroba; wsparcie
Issue Date: 2018
Citation: Roczniki Pedagogiczne, T. 10, Nr 3 (2018), s. 105-117
Abstract: The topic of the article is the experience of social support for parents of children with rare genetic diseases. A child's disease changes the life of the whole family: the nature of marital relationships, relationships between siblings, strengthening ties or vice versa – weakening them. In the biographical studies of the parents of the sick child, I was interested in answering the questions: How does the situation of living with a child suffering from a rare genetic disease determine the marital life of their parents, in particular the mutual relations between them? Do and how do spouses support each other in the event of a child's illness? Does / how the child's siblings give support to his parents?
DOI: 10.18290/rped.2018.10.3-7
ISSN: 2544-5243
Appears in Collections:Artykuły (WSiNoE)

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